On Friday last week, we were finally taught how to give the foscarnet at home. They gave us all the supplies: IV tubing, more alcohol swabs, two pumps, some other stuff, and the bags of drugs. We are now able to do the second dose of the day at home instead of going to the ITA. We also got to do both doses on Sunday at home. This week, I’ll be able to do all the evening doses and both doses on Tuesday and Thursday at home. I’ll only have to go to the ITA on Wednesday and Friday mornings.
I was also given permission to go home to Sacramento for the weekend. Depending on what this week’s CMV test results are, I may only have to go to the ITA twice next week. I haven’t decided yet whether I’ll use my weekend pass. I’d have to return here to Stanford on Sunday evening in order to go to the ITA on Monday morning. My counts aren’t yet up to normal, so I wouldn’t be able to go out anywhere without my mask.
I guess that’s all the news for now.
Ahhhh, a glimpse of freedom in part. That is wonderful. Even if you choose not to use your pass, just knowing you have the option probably makes all the difference in the world.
Isaiah 61:1b: He has sent me to bind up the brokenhearted,
to proclaim freedom for the captives
and release from darkness for the prisoners,
Thank you Lord for drugs at home, shorter ITA times, and encouragement.
I think you will make a fine masker….it’s a real word…I just looked it up. I guess that makes you ITA Master Masker Todd. Oh yeah baby, wear the title with honor.
Many more prayers and love your way. ~ Patty
WOW! How exciting that you could come home–sounds like a slippery slope in the right direction–the homeward direction!! If they let you go for a weekend now, how about a week later…we all love good news.
I am off to go camping…
thinking of you,
Darcy
Sometimes it’s just the tiny little victories that carry the heaviest loads. Congrats on this bit of good news. You are constant in our prayers Todd.
Juliet
When do you get to de-mask?
It’ll be great to see you back in Sacramento!
Thinking of you guys and praying, praying, praying…
-Kerry
Tried this once. Will try again.
I am sure you have mixed feelings about using your get out of jail free card. The mask thing, the fatigue of travel and visitors etc. But it sure is a boost to the spirit to even know it is a possibility.
I remember all to well Tyler coming home. I was so thankful to have our Jennifer there as a filter. She answered the phone and door and acted as a buffer. It is hard. You want to see all of these friends who have been so supportive, yet you really do need to maintain some privacy and ability to rest.
We would put out signs on the door when we did not want visitors and we had a guest book people could sign who came by but we just couldn’t visit with at the time. I know how hard it is to say no, but it really is something you have to prepare for and a buffer really did help us.
We head out to the Dr in a few minutes. Today is day 360 post accident and we anticipate to get final clearance on the leg. It is hard to believe that it can take that long for the bone to fill in in all those places and the muscle to regrow. We will let you know. Ty does hope to get a release to return to football next week. Yep, I just may need something a little stronger than coffee Monday morning when he heads back out there on the field. He did get his special cleat made and he says it feels really good.
I have to say it feels good to be back home. The guys didn’t even make too many messes. Yes folks there is always hope.
Take care and give the Grandparents a big hug. I am so proud of what they are doing to help you.
When you reach this restless stage it is hard to allow others to care for you. Trust me as a nurse I get the difficulty of that one. It is so much easier for me to be the care giver. I do believe that is one of God’s lessons for us, not only to care for one another but to be humbled by the experience of accepting the grace of being cared for. A much harder experience by far.
Love and Peace,
Aunt Dianne
Just wanted to add my comments to others who’ve ‘gone before’…
It is truly a wonderful thing after all of this to have the option to go home for a weekend…
And I’m thankful & rejoicing with you at the opportunity to do your meds at home as well…
It all seems to boil down to ‘baby steps’ doesn’t it? Reminds me of the ‘What About Bob?’ movie… Baby Steps…
Love, Mom
How wonderful to be able to do meds at home. Take a nap in your own bed- all the comforts. Beats going back and forth. Spoke to Jen last night. I know she is looking forward to you permanently being in Sacramento- getting back to a more normal life- I’m praying you will be in great shape, without mask, for your time off at the beach in August.
Linda