Finally, another post!
As I mentioned last time, Jen and I met with Dr. Miklos on August 10 at Stanford to talk about future treatment options. His opening line: “Has anyone talked to you about how bad this donor was for you?” Needless to say, we were shocked, since we were told before that the [...]
Archive for the ‘BMT’ Category
Meeting with Dr. Miklos: feeling low, lower, then higher.
Posted in BMT, CLL, Stanford on September 5, 2007 | 10 Comments »
The latest haps.
Posted in BMT, CLL, brownies on August 21, 2007 | 10 Comments »
First off, thank you all for not hounding me to post new info. I know it’s been almost two weeks since the last post, but I’ve been busy. Well, as busy as a guy can be without going to work. Alright, I haven’t been that busy. But I was without convenient internet access for a [...]
T+???…actually, this number no longer matters!!
Posted in BMT, CLL, Stanford on June 29, 2007 | 20 Comments »
We might as well stop counting the days since this transplant has come to an end. Dr. Lowsky met with us today and discussed the test results of the bone marrow biopsy and the subsets. Bottom line, the disease in the marrow is still approximately 30% which has not changed from the findings [...]
T+38: My hip isn’t sore (yet).
Posted in BMT, CLL, Stanford, post-transplant, tests on June 25, 2007 | 15 Comments »
This morning’s bone marrow biopsy was scheduled for 10:30, and we were told to arrive at 10:00. We did. Someone told us when we started all this that there are two kinds of time: real time that you read on a clock, and hospital time. Today was all on hospital time. Very frustrating when they [...]
T+35: So close to dairy!
Posted in BMT, CLL, Stanford, brownies, post-transplant on June 22, 2007 | 25 Comments »
Today in the ITA, the dietitian stopped by to see how I was eating and drinking. She said I can start having dairy again at T+40, starting slowly with cheese. On the other hand, I don’t think she knows about what’s coming up for me. Really, what’s the point of having dairy (and likely intestinal [...]
